Pheochromocytoma Journey for Skye Day 8
The start of the day began slowly. I talked to a couple of clients on the
phone. I will keep one and try to take
on a new one. But, one of my clients
that isn’t benefiting my condition, will have to go. I can’t afford to extend myself to the point
where it’s costing me money to deal with him.
This isn’t the 1st client I had to let go. After the phone calls I started working on my
Daughter Journal. It is 365 days of
motherly advice. I’ve been working on it
for 1yr already. I’m hoping to catch up
on it when my work load slows down. So, Queens hospital called me early this afternoon. They said the meds re ready for pick up. But, when I called my pharmacy, it wasn’t
there. So, I called the hospital and
they mentioned to me that the prescription I need is at a Queens
pharmacy instead, which is in a awkward location. I would have to walk up a steep hill and walk
down a steep hill. Not good, I could
easily get a spill walking up. But, I
got to do what I got to do to feel better. So, I go and get it tomorrow. I probably won’t get a ride, so I’ll get a
bus and walk the hill. Right now, it seems like any movement I do,
starts a spell and they coming closer and closer. Now I know what I got, I notice my symptoms
more. I know more of my swelling, and
more of my spells, instead of saying I must be tried or I must not eat anything
and that’s why my head is hurting. No,
it’s the pheo. I’m still on the search
for support for my rare condition. I
found a stand up for cancer site on line.
I also found out that they are doing a tv telethon, but when I called
the tv station and called the hosp PR dept. not even PR heard of it, even though the hosp is sponsoring the
telethon. To make a long story short,
it’s just a syndicated show and no one knew anything, from the hosp to the tv
station. I found that the cancer is not
related to clinic I go to. There is a
bad thing that a lot people or locals do in Hawaii , I am noticing more and more. That when a local doesn’t want find the
answer they don’t know, they think it’s to not answer your question. I get that when I call the insurance company,
when I called the hosp(all the time) and when I call city hall. Customer Service is when they don’t know.
they’ll find out. Here, you got to tell
them to find out your answer that the person should know to begin with. It’s like when You go to a fast food place
and now they won’t give more then one napkin or no condiments unless you ask for
them. They all are taking the fast food
attitude and it’s make them all look cheap and bad in my book. Hawaii
should want to have a higher level of customer service in a service related
job. Duh* I have a lot of anxiety over
taking the new meds. I hope I don’t have
to cancel my Hard Rock gig that worked hard to get, but it looks like I will,
even though I don’t want to admit it. I
wanted clean water, so I thought I would buy a water pitcher with filter, but
stewhen I went to the grocery store, it was too high for my taste. Oh well, next time. Here is some info on Pheo I found. Every day I found a youtube link and good
info sites.
**email; pheo.n.skye@gmail.com,
For those that would like to only talk about all things
concerning Pheochromocytoma.
Check out my short new Youtube blog: http://youtu.be/CeqIAac_k9I
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