Sunday Sept. 2, 2012
Skye’s Pheo Journey
Got up early, but didn’t jump out of bed and I don’t drink
coffee. At times I act like I do drink
coffee. I took a BP reading. It was around 135/97 with a pulse rate of 77. Yesterday the pulse rate was 97. So, I guess the pills work. Are they working? I questions so much these days if the
hospital is doing what’s right for me. I
don’t know if I’m taking those little red pills like I should. Because I don’t take it except once a
day. But, I didn’t take it at the same
time as yesterday when I started. I
wonder if the meds are working? Cause it
seems like I’m having more spills since I started taking the Benos(my shorten
name) phenoxybenzamine
pills. Maybe, it’s me being more aware
of my disease. I have been reading a lot about Pheochromocytoma and what I
should eat to keep my BP low. I use a
salt substitute that I have been using for a while. I’ve been having BP for years, thinking what
lead me to my BP was my diet. I slowed
down & gave my diet a retrospective reconstruction a long time ago, when I
thought the dizzy spills were due to my salt intake. Plus, my Grandmother had 2 heart
attacks. Which lead me to believe I
could have inherited it. I thought that
was my reason for having my own 1st heart attack, at age 36. Did Grandma have it too? No, she lived longer than 45, which is the
age of a person to more likely get Pheochromocytoma. It can turn fatal if goes undetected like
me for at least 5 years, due to the size of the tumor.
So, when I got up that Sunday, I knew what I wanted to get
at the market. I like going to Chinatown
on Sundays. At the open market, I can
buy vegetables cheaper than I can get them at the high priced grocery store or
health food store all geared to get the tourist/enlisted military buck. I have my favorite stores & deals on
tomatoes, onions, potatoes, cabbage, & avocados. Some times I get fresh cut meat from the
indoor market. But, today I have a taste for fried green tomatoes. I was able to find a few really good green
tomatoes to fry up. I will fry it up
with olive oil and stone ground organic corn meal in a glass skillet. I have been watching Dr. Oz & he said
that the best way to know real olive oil is by seeing on the bottle, a harvest
date. Ever since I heard that, I tried
to find a harvest date on a bottle of olive oil. I could only find one store in all of
Honolulu at a reasonable cost of $ 16 per 10oz bottle. I thought this one CA brand of oil was true,
but I found out it wasn’t a trusted brand.
It was a easy going day all in all.
I got fresh sun worn ripe veggies. So, now I feel that’s a fresh start in keeping
my BP low and help it work with my new Benos meds. Mahalo for taking the time to care enough
about a rare disease & caring about the struggles in life that leads a
person to act out. The video is a little
shaky today.
Today’s Youtbe: http://youtu.be/s95EW_TBhEg
Here are some video links about Pheo & it meds:
If you would like to talk about Relay for Life or anything about Pheochromocytoma only, email me at; pheo.n.skye@gmail.com
