I woke up early on the Sat., 1st of
September. It was ok, to go bed early,
because the spells wear me out. I woke
up next the Matt, even though we were in separate rooms, watching tv the night
before. My buddy & event ticket
source, Sam, wanted my assistance in social media by doing a youtube
video. Sam has been there for me few
times, when no one else seemed to care, so I was happy to help out. Sam had been fighting to keep a non-profit he
created to remain under directorship. But, his parole officer is trying to
relinquish his right to be Pres. Of a organization he founded to help out
parolees & homeless parolees with outreach & resource help. He wanted to grow to run a transitional house
for them. Sam’s dream was not to turn
out as he & others have hoped, cause the court system has him ties up in
discoveries, the court not finding files they should have, but request the same
of him. Seems like the same ole’ red
tape court dragging thing that goes on when the gov. doesn’t want to assist a
parolee, like Sam. I left the house before
7:45am to get downtown Honolulu by 8am.
I meet Sam in front of the Honolulu Hale City Court House. There was only one homeless guy sleeping on a
far bench, out of our way. It only took
30mins or less to film Sam in a interview style. I was back home by 9am to go to the
beach. It was perfect Honolulu Weather
for going to the beach. With me knowing
what all those spells mean, has me confused over the surgery &
understanding the seriousness of my condition, since it seems on one else does. So, I changed into a swim suit, woke Matt
& brought him out to film me. I like
floating in the water & staring up at the clouds drifting by & take in
the smells of seawater & hibiscus.
It was before noon & there weren’t many tourist due to the time of
year, plus the economy is a little flat. IT’s in between the start of new
school year & end of summer. I feel
has coped with my new diagnosis with drinking more than usual. He has some level of denial that won’t let
him read the info I copy for him to read & take seriously the extent of my
illness. To not have your mate go thru this with me is hard to take. So, I floated. Floating would allow me to not think about
doctors, appointments, meds, blood pressure cuff readings, & the thought
that having Pheo could cause a stroke or heart attack at any moment & I’ve
been that way for a while is jeering to me.
Just float away the stress, the strain, the pain. I try to create a positive healing
environment for myself, which means surrounding myself with beauty, peace,
love, & harmony. But, I wasn’t
feeling none of that. The floating was
over, though I could floated all day. I
went home, eat, rested some more, then got later to see Matt off to his gig he
does every Sat night for the last 12plus years with various bands. I checked my blood pressure & right in
down in my calendar. It was still high
over 160, but that was normal for me. I went
out to see Matt perform & tries to get in a song. If I’m lucky, Stewart would call me up to do
a blues song on the last set. At times
my level of depression will go off the charts & seemed surreal. Any conversation I had with a friend seem so
pity to my ongoing thought that what I had could kill me. I needed to tell my friend, Jay about my
condition> We had been growing apart,
ever since he decided that he was going to be a father & dedicate more of
his time after his divorce on his children.
I knew him ever since I came to this rock. I thought he deserved to know why I’ve been
acting the way I have, a lil’ koo koo. I
tried to mention it over the phone, but I could get it to come out right. He had a date coming over. So, as soon as I realized that I wasn’t going
to get a song, went over to Jay’s & toked & told my story. I didn’t stay long & moved on to the
karaoke bar to get in a song or two. Jay
did sound hopeful & it’s good to know he cared. I don’t want folks to think I’m not trying to
live. So, I went into Smith Union
Karaoke Bar. It’s a lil’ dive bar that
has gone through a few owners. I like
the indoor waterfall & lots of Hawaiian designs in there. I got in 2 songs & two beers, then left. I
still got home before Matt, who likes hanging around the bar after his gig to
hear the next band & get in an extra drink.
I turned on the boob tube, took a BP reading, wrote it down & fell asleep
over watching Golden Girls**
My Youtube: https://www.youtube.com/watch?v=bx4oYa1hgV4
Here’s
a couple of link about Pheo to check out:
Symptoms: http://www.endocrineweb.com/conditions/pheochromocytoma/pheochromocytoma-tumor-central-adrenal
Email
me about Pheo: pheo.n.skye@gmail.com
For those that would like to only talk about all things
concerning Pheochromocytoma.
