Pheochromocytoma Journey for Skye Day 9

Pheochromocytoma Journey for Sky Day 9

 

Day 9 started off fine.  Of course, I played phone games, but decided not to let it stress me out.  I went between calling Ace Medical equipment and Aloha Care insurance. 

Aloha Care told me the blood pressure cuff Dr. Onopa ordered for me was approved, but Ace Medical didn’t want to pay the cost price, which was $15, when they over charge insurance companies and patients with a insane cost of $98.  Let’s all understand that the basic retail cost is only $20 to $35 at any box store.  When I asked Venessa, the  president of the company to pay cost for one time, she refused.  I asked Venessa to eat one blood pressure cuff and consider it as a donation.  She said NO!  What is wrong with a company that puts profits first, oh yah, it’s called corporate greed.   I talked to Dr. Onopa and after 3hrs of phone play, she said that I could get the meds and blood pressure cuff, but only from Queens Physicians’ Building on a big hill.  For what I consider a selfish reason on the part of Queens Medical to keep the prescription bill with them, is why I can’t use my pharmacist.  During this time and during my client calls, I was having spells.  I tried drinking water, but my heart was racing, so I took an aspirin, since I had no pheo meds yet.  My head was spinning too.  I was just a little dizzy.  I wanted to lay down, but my need to make my own money was greater.  The only type of work I can do, while getting spills is my part time, self-employed work.  I have got spells since the mid 90’s.  It’s that when GMOs got more into the U.S. food supply.  Within the last couple of years the spells have gotten worse.  My husband told me I didn’t have to work for the 1^st 2yrs of marriage, but it didn’t make the spells stop like I wished.  Now, it’s time to go back to some kind of work & my husband is feeling the financial strain from me not working, so I thought.  So, I did think, till I found out he was spending his money on what would eventually ruin our relationship & my trust in him. The day has passed along and by then it was 4pm.  So, I decided to go and pick up the prescription tomorrow.  Later that evening, my relationship with Matt was wearing on me, so I choose to go out to the local mall to pay on a bill and get out of the house.  I enjoyed walking along the hnl city streets, watching the boys play b-ball and watching the action of city lights at night.  The walk helped me gather my thoughts, which have been all over the place, lately. Later, I got a good spot to film myself in the mall that just stood out to me and I filmed.  Just talking and getting worries of my day off my chest relieves a little of the stress of dealing with the misunderstandings that I get from the insurance, med supply provider, and Dr.  To my readers, I say, Aloha for listening.  Sometimes it can be rough discovering a rare disease and try to find some understanding. 

**email; pheo.n.skye@gmail.com,

For those that would like to only talk about all things concerning Pheochromocytoma.
Helpful Link to learn more about Pheo: http://www.cancer.gov/cancertopics/pdq/treatment/pheochromocytoma/Patient#Keypoint6

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