Skye’s Pheo Journey Day 16
September 6, 2012*
I got a call early to meet my last client, Wade. We are going to finish cleaning up before his love comes to town. Something to do, is what I need to keep my mind occupied. It’s hard to let work go. I’ve been working for myself for the last couple of years, cause I felt the need to keep my own hours. Also, I wanted to try to go after a bigger goal to motivate others to do & treat people better. Now, I know it was the spells & my condition that was subliminally keeping me from getting a straight job. I have really busted butt the last year to earn my own trip to Austin for Int'l Poetry Festival, NYC for Momapalozza (that would lead me to being inducted into the Museum of Motherhood) and organize a huge portion of the Chinatown Juneteenth street festival. The street festival organizing left me feeling unappreciated and unvalued. Volunteering can be rough. When I found out my art was accepted into a Smithsonian sanctioned museum, it turned into a pilgrimage for me to be there. It’s that same attitude I put toward managing the outcome of this Pheo journey. I refuse to let the unfriendly doctors and bureaucratic tape that keeps me from getting a level of service I feel I deserve.
It’s Thursday and I don’t have any doctor’s appointments. I’ve been looking for support groups on line. I found PRESSOR and Pheo Troopers. I need to learn more about them. I haven’t the time to read on line lately. I can’t seem to find a family member to come over. So, I am trying to get support to bring Scott here. Mrs. Marsha offered to go, but I don’t want to burden her, cause I know my attitude is going to get worst as time goes on, closer to the surgery. When the fear sets in I get the why ME’s and a little angry. I know I’ll have to come up with the money myself to bring him here. A ticket from KY to Honolulu, isn’t cheap. So, I put up an ad to do Rasta Dreads on line. I charge a decent rate and do a good job. I asked that Matt do 1st Thursday Open Mic Poetry Slam with me. I told him it’s my last 1st Thursday for a while. Its good practice for my own Poetry Nite at Rafter’s on the 28th of Sept. I’ve hosted a few “Skye’s 4th Friday Poetry Nite” since 2005, at various gig spots around Honolulu. Matt has a hard time rehearsing with me. Somehow he feels like he doesn’t have to with me. Sax Man Matt has a gig at Rafter’s this coming Sunday. He has only came to 1st Thurs a couple of times, each at a different venue. I’ve been doing 1st Thursdays since 2003, in Chinatown. I treated Matt to a drink and we strolled over to the spot early, to sign up. I like getting on the stage early while the crowd is hot, then pass my cards around. Sometimes I pass out a couple of my chap books and find poets for my poetry gigs. There was a good poet, named Gary that sound like a spiritual poet. The deepness in his lines moved me. I had to get his number and invite him to 4th Friday. Both Matt and I wearing hats, gave us a smooth artsy style. Being the Cool Middle age couple, is a good look on us. Of course, the crowd totally dug into our jazzy southern poetry vibe. We had a good walk home. You could smell the fragrant Plumeria through the breeze coming from the flowered trees. The luscious floral scent made me feel safe and relaxed as we strolled home. Being sick makes me forget it’s the simple things that make you feel good. When Matt and I got home, we watched some news from bed. I made sure I took my second pill of the day and took my night time blood pressure reading. Matt likes something sweet before he goes to bed. It use to be me, now he eats. Oh, well, I know I have that EKG to take in the morning, than do one last thing to help Wade get his place ready. Hopefully the weekend will go as well as tonight. I love doing poetry, it was a great release. It will help me have better dreams.
Here are some videos & links about Pheo& it meds:
If you would like to talk about Relay for Life or anything about Pheochromocytoma only, email me at; pheo.n.skye@gmail.com
This is a fun one with a fun Youtube**
ReplyDelete