Wednesday, September 12, 2012


Pheo Journey for Skye  Day 3*
This morning started off good.  I’ve worked with my client Wade yesterday and got paid for doing some cleaning, cause he kicked out his room mate.  The first thing I did was to go to the DHS office.  I talked to a office manager, who said that she understood and would reinstate my disability interview appointment with the doctor.  So, I felt good going into my psychiatry appt., till I talked to them.
They first sent in an intern resident.  Queens Hospital is a teaching hospital.  I told her that I was not comfortable talking to her, after her asking me about my drinking habits.   I said “Really”, that’s not my issue.  My issue is your staff and me not feeling safe in your hands.”  What looked like a little girl to me, then mentioned that drinking is what Dr. Janet said I had a problem with.  I told her that the Dr. was wrong to say that and to immediately correct that from my record.  She left and came back with two more people without introducing me to the other intern.  The professor or the real Dr. seem to be full of attitude and unwilling to listen to me.   He came in and started asking me about shaking and waking up in the morning drinking.  He sat down and slumped in his chair as if he was a kid.  I basically told him he was more than wrong and was taking the conversation in the wrong direction.  I said, we should be talking about my fear of  hospitals and dying in one.  He then told me, my issue is with the hosp. and I should go to another Dr. outside of Queens Hosp. and left.  I felt like the visit was a big waste of time.  I really didn’t like the fact that they get paid for not doing anything to help me.  What a crock.  So, I paid a bill and went home.  I wasn’t going to let a bad Dr. visit ruin my mood.  Today is Aloha Friday, so I feel like going out, but I don’t have anyone to go out with.  I like to dance in my bedroom to music and change my clothes.  As a woman, I enjoy playing dress up.  I’ve been playing dress up since I was a toddler and haven’t stopped.  I like trying on clothes, dancing around my room to the and latest beat and think I’m a better dancer than J-Lo with my moves like Jagger. Even if I can’t change my condition, at least it feels good to dress up, put on makeup and
hear a good tune with horns in it.  Today, you don’t hear horns like you should in music.
I seriously miss live bands and good live music, which I feel is seriously needed in today’s society.  No one can afford a big band or is everyone a loners?  Is loner attitude the same attitude taken toward my condition by the doctors,  their workers, and the service providers and the state officials?  Just something to make you say “Hmmm.”  Here is a video I found that night on the Pheochromocytoma facebook page: http://player.vimeo.com/video/44491869
*Here is my Youtube of what happened Friday; http://www.youtube.com/watch?v=-hxhJjqz704
Email; pheo.n.skye@gmail.com, for those that would like to only talk about all things concerning Pheochromocytoma.
 

 

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